Sharing data for broader impact
Access to RECOVER Observational Cohort Study Data
RECOVER researchers are collecting data from thousands of study participants. In compliance with NIH’s Data Management and Sharing Policy, RECOVER makes this data available to the scientific community and the public at large, allowing those interested to view the data and researchers to analyze it, learn from it, and incorporate it into future studies. In this way, we hope to broaden and extend our understanding of how to diagnose and treat Long COVID.
Anyone may explore observational cohort study data (aggregate counts returned only) without going through an approval process. However, to analyze de-identified individual participant data from the RECOVER observational cohort studies, researchers must receive authorization for access. This authorization is required to maintain the integrity of the data and protect participant privacy.
Authorized researchers can access RECOVER observational cohort study data from BioData Catalyst® (BDC) and browse RECOVER results on the RECOVER publications page.
BioData Catalyst (BDC)
RECOVER scientists use BioData Catalyst (BDC), the National Heart, Lung, and Blood Institute’s (NHLBI’s) cloud-based research ecosystem, to store and analyze the scientific data they collect from observational cohort studies.
BDC currently hosts two RECOVER datasets:
- A dataset from the RECOVER adult observational cohort study which represents more than 15,000 adults who took part in more than 121,000 study visits at 83 enrolling sites across the country.
- A dataset from the RECOVER pediatric observational cohort study which consists of survey and laboratory results from more than 24,000 young adults, children, infants, and their caregivers who participated in more than 62,000 study visits at 115 enrolling sites across the country.
BDC provides information about exploring RECOVER data (no login required) and requesting authorization to access de-identified individual participant data (login required) for scientific analysis within BDC.
Data Related to RECOVER Publications
Access to the data used for some RECOVER publications may also be made available to authorized researchers.
Researchers may request access to the datafile associated with the JAMA publication “Development of a Definition of Postacute Sequelae of SARS-CoV-2 Infection” published on May 25, 2023. This file contains more than 3.3 million de-identified data entries and a Data Dictionary.
Request JAMA Publication Dataset
*For Authorized Researchers only. Credentials required.
