Seeking diverse experiences of Long COVID

Inclusivity and diversity
RECOVER study staff and participants include people of many races and ethnicities, ages, genders, jobs, education levels, incomes, U.S. locations, and health conditions. We think carefully and often about who may not already be involved in RECOVER and how we can respectfully engage and involve them.

Safety
We promote a culture of safety to ensure that patients, caregivers, community members, RECOVER Representatives, and study participants feel safe, welcomed, and engaged.

Transparency
We openly share information about the RECOVER study and its findings with participants and the public with the aim of fostering and maintaining trust.

Accessibility
We share information about the RECOVER study in a way that people can easily find and understand it. We work to limit barriers to increase enrollment to studies.

Two-way communication
Communication between RECOVER staff and the public, including participants, is two-way so that both groups can send, receive, and share information. We ask participants and the public for their input and questions about the RECOVER study and use their feedback to improve the study. Participants and the public are able to send us their questions, and we listen carefully and answer them. These collaborative communications inform and contribute to the decision-making processes of the initiative.

Accountability
We hold RECOVER staff and leaders responsible for making sure RECOVER follows research standards and ethics, including to do no harm and to avoid re-traumatizing individuals and communities.

Collaboration
We work and search for opportunities for collaboration to get input and feedback through forums and discussions.