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R3 Seminar Recap: Ethical considerations for enrolling “invested parties” in large-scale clinical studies: Insights from the RECOVER Initiative

During the January 28th RECOVER Research Review (R3) Seminar, Dr. Kellie Owens, PhD (NYU Grossman School of Medicine) shared ethical guidance for enrolling individuals in clinical studies who have direct involvement with the research. Dr. Owens was joined by co-authors Leah Castro, MA (RECOVER Community and Caregiver Representative) and Rebecca Letts (RECOVER Patient and Caregiver Representative), who described Representatives’ important role in designing RECOVER clinical studies and developing peer-reviewed research publications.

R3 Seminar Recap
Clinical Trial Observational

RECOVER study finds COVID-19 increases risk of developing ME/CFS

RECOVER researchers found that people were more likely to develop myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) after having COVID-19. Most of the people who developed ME/CFS also developed Long COVID.

Feature
Observational Adult

A person’s sex may affect their risk of developing Long COVID

Some women taking part in RECOVER research were more likely to experience Long COVID compared to men.

Announcement
Observational Adult

NIH-funded study finds cases of ME/CFS increase following COVID-19 

Results from a recent RECOVER study suggest that adults who have COVID-19 may be more likely to develop a related condition called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

News Release
Observational Adult

New insights on Long COVID symptoms in adults highlight update to RECOVER study findings

Data provided by more than 3,800 new study participants reinforce how the long-term effects of COVID-19 can be different for everyone.

Announcement
Observational Adult

Reviewing RECOVER’s impact in 2024

In 2024, RECOVER continued to advance scientific understanding of Long COVID through observational studies, clinical trials, and community engagement.

Feature
Clinical Trial Observational EHR Pathobiology Adult Pediatric Pregnant Women

NIH directors highlight RECOVER’s progress and impact

Editorial by NIH leaders shares how RECOVER has worked and will continue working to ease the suffering of those living with Long COVID.

Announcement
Clinical Trial EHR Observational Review Adult Pediatric Pregnant Women

NIH adds funds to Long COVID research, advances work on new clinical trials

The $662 million in funds received in 2024 will ensure that researchers can continue making progress toward understanding, diagnosing, preventing, and treating Long COVID through 2029.

News Release
Clinical Trial Observational EHR Pathobiology Adult Pediatric Pregnant Women