NIH RECOVER makes Long COVID research data easier to access
De-identified data from thousands of adults with Long COVID are now available to researchers
Secure data from more than 14,000 adults who participated in the National Institutes of Health’s (NIH) observational research on Long COVID are now available to authorized researchers through BioData Catalyst® (BDC). BDC is a cloud-based ecosystem developed by the National Heart, Lung, and Blood Institute (NHLBI), part of NIH, to accelerate research on heart, lung, blood, and sleep disorders. The research on Long COVID—broadly defined as signs, symptoms, or conditions that persist or develop for at least four weeks after an infection from the virus that causes COVID-19—is provided through the NIH Researching COVID to Enhance Recovery (NIH RECOVER) Initiative.
By giving researchers access to secure data, analysis tools, and resources, the BDC ecosystem aims to spur scientific innovation, collaboration, and discovery while providing a platform for sharing data and validating results. The addition of RECOVER data to BDC can help investigators identify and explore Long COVID connections that may benefit from or inform future studies.
Authorized researchers can now request access to a subset of data from adults in the observational RECOVER cohort. These data include information from more than 92,000 study visits collected between Oct. 29, 2021 and Sept. 15, 2023 at 79 locations throughout the United States. New RECOVER data, including data from other studies, will be added to BDC at regular intervals.
As investigators seek to better understand, diagnose, and treat Long COVID, many critical questions remain. By adding RECOVER data to a central ecosystem, RECOVER is making that data more accessible and helping experts find more answers sooner.
